{"id":41,"date":"2025-02-24T13:07:29","date_gmt":"2025-02-24T18:07:29","guid":{"rendered":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/?post_type=back-matter&p=41"},"modified":"2025-06-24T12:41:26","modified_gmt":"2025-06-24T16:41:26","slug":"references","status":"publish","type":"back-matter","link":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/back-matter\/references\/","title":{"raw":"References","rendered":"References"},"content":{"raw":"
Chapter 1<\/h6>\r\nAmerican Psychological Association. (2021). Equity, Diversity, and Inclusion Framework. American Psychological Association. https:\/\/www.apa.org\/about\/apa\/equity-diversity-inclusion\/framework.pdf<\/a>\r\n\r\nBenz, C., Scott-Jeffs, W., McKercher, K. A., Welsh, M., Norman, R., Hendrie, D., Locantro, M., & Robinson, S. (2024). Community-based participatory-research through co-design: supporting collaboration from all sides of disability. Research Involvement and Engagement, 10(1), Article 47. https:\/\/doi.org\/10.1186\/s40900-024-00573-3<\/a>\r\n\r\nBeyond Sticky Notes. (2020). What is co-design?. https:\/\/www.beyondstickynotes.com\/what-is-codesign<\/a>\r\n\r\nCase Western Reserve University. (2018, April 18). Universal Design for Research. https:\/\/case.edu\/nursing\/universal-design-research<\/a>\r\n\r\nGoodfellow L. T. (2023). An Overview of Survey Research. Respiratory care, 68(9), 1309\u20131313. https:\/\/doi.org\/10.4187\/respcare.11041<\/a>\r\n\r\nPonto J. (2015). Understanding and Evaluating Survey Research. Journal of the advanced practitioner in oncology, 6(2), 168\u2013171.\r\n\r\nRachele, J. N., Burn, G., Burke, K., & Alisic, E. (2024). Improving inclusion for children and young people with a disability in inner-city Melbourne, Australia. Cities, 150, 105103. https:\/\/doi.org\/10.1016\/j.cities.2024.105103<\/a>\r\n\r\nSheridan, E. (2021, January 31). The curb cut effect: How universal design makes things better for everyone. Medium. https:\/\/uxdesign.cc\/the-curb-cut-effect-universal-design-b4e3d7da73f5<\/a>\r\n\r\nToronto Metropolitan University. (2025). Survey tool selection guide. https:\/\/www.torontomu.ca\/courses\/guide-to-tech\/survey-selection-guide\/<\/a>\r\n\r\nUnited Nations. (2021). Disability Inclusive Language Guidelines. United Nations. https:\/\/www.ungeneva.org\/sites\/default\/files\/2021-01\/Disability-Inclusive-Language-Guidelines.pdf<\/a>\r\n
Chapter 2<\/h6>\r\nAndrews, E. E., Powell, R. M., & Ayers, K. (2022). The evolution of disability language: Choosing terms to describe disability. Disability and Health Journal, 15(3), 101328. https:\/\/doi.org\/10.1016\/j.dhjo.2022.101328<\/a>\r\n\r\nCarter-Long, L. (2017). Nothing feels real a third of the time. Ouch Talk Show presented by Kate Monaghan and Simon Minty. London, United Kingdom: British Broadcasting Company. Retrieved from https:\/\/www. bbc. com\/news\/disability-42223698.\r\n\r\nConroy, N. E., McDonald, K. E., & Olick, R. S. (2021). A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research. Journal of Intellectual Disability Research, 65(10), 941\u2013948. https:\/\/doi.org\/10.1111\/jir.12877\r\n\r\nHarvard University Program On Survey Research. (2007, November 17). TIP SHEET ON QUESTION WORDING. https:\/\/psr.iq.harvard.edu\/sites\/g\/files\/omnuum11131\/files\/psr\/files\/PSRQuestionnaireTipSheet_0.pdf<\/a>\r\n\r\nJames, D. C. S., Harville, C., Whitehead, N., Stellefson, M., Dodani, S., & Sears, C. (2016). Willingness of African American Women to Participate in e-Health\/m-Health Research. Telemedicine Journal and E-Health, 22(3), 191\u2013197. https:\/\/doi.org\/10.1089\/tmj.2015.0071<\/a>\r\n\r\nJohansson, S., Gulliksen, J., & Gustavsson, C. (2021). Disability digital divide: the use of the internet, smartphones, computers and tablets among people with disabilities in Sweden. Universal Access in the Information Society, 20(1), 105\u2013120. https:\/\/doi.org\/10.1007\/s10209-020-00714-x\r\n\r\nMatthes, N., Willem, T., Buyx, A., & Zimmermann, B. M. (2024). Social Media Recruitment as a Potential Trigger for Vulnerability: Multistakeholder Interview Study. JMIR Human Factors, 11, e52448\u2013e52448. https:\/\/doi.org\/10.2196\/52448\r\n\r\nMikulak, M., Ryan, S., Russell, S., Caton, S., Keagan\u2010Bull, R., Spalding, R., Ribenfors, F., & Hatton, C. (2022). \u2018Internet is easy if you know how to use it\u2019: Doing online research with people with learning disabilities during the COVID\u201019 pandemic. British Journal of Learning Disabilities, 10.1111\/bld.12495. https:\/\/doi.org\/10.1111\/bld.12495<\/a>\r\n\r\nNicolaidis, C., Raymaker, D. M., McDonald, K. E., Lund, E. M., Leotti, S., Kapp, S. K., Katz, M., Beers, L. M., Kripke, C., Maslak, J., Hunter, M., & Zhen, K. Y. (2020). Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations. Autism in Adulthood, 2(1), 61\u201376. https:\/\/doi.org\/10.1089\/aut.2019.0074<\/a>\r\n\r\nSobolewski, J., Rothschild, A., & Freeman, A. (2024). The Impact of Incentives on Data Collection for Online Surveys: Social Media Recruitment Study. JMIR Formative Research, 8(1), e50240. https:\/\/doi.org\/10.2196\/50240<\/a>\r\n\r\nUnited Nations. (2019). DISABILITY-INCLUSIVE LANGUAGE GUIDELINES. https:\/\/www.ungeneva.org\/sites\/default\/files\/2021-01\/Disability-Inclusive-Language-Guidelines.pdf<\/a>\r\n
Chapter 3<\/h6>\r\nBishop, R., Laugharne, R., Shaw, N., Russell, A. M., Goodley, D., Banerjee, S., Clack, E., & Shankar, R. (2024). The inclusion of adults with intellectual disabilities in health research \u2013 challenges, barriers and opportunities: a mixed\u2010method study among stakeholders in England. Journal of Intellectual Disability Research, 68(2), 140\u2013149. https:\/\/doi.org\/10.1111\/jir.13097\r\n\r\nGovernment of Canada. (2023, January 11). TCPS 2 (2022) \u2013 Chapter 3: The Consent Process https:\/\/ethics.gc.ca\/eng\/tcps2-eptc2_2022_chapter3-chapitre3.html#10<\/a>\r\n\r\nGovernment of Canada. (2023, January 11). TCPS 2 (2022) \u2013 Chapter 5: Privacy and Confidentiality. https:\/\/ethics.gc.ca\/eng\/tcps2-eptc2_2022_chapter5-chapitre5.html<\/a>\r\n\r\nGovernment of Canada. (2024, April 5). Research Ethics Board: Consent process. https:\/\/www.canada.ca\/en\/health-canada\/services\/science-research\/science-advice-decision-making\/research-ethics-board\/consent-process.html<\/a>\r\n\r\nHamilton, J., Ingham, B., McKinnon, I., Parr, J. R., Tam, L. Y., & Le Couteur, A. (2017). Mental capacity to consent to research? Experiences of consenting adults with intellectual disabilities and\/or autism to research. British Journal of Learning Disabilities, 45(4), 230\u2013237. https:\/\/doi.org\/10.1111\/bld.12198\r\n\r\nMcMaster University. (2022, September 28). MREB Data Storage and Security Tools. https:\/\/research.mcmaster.ca\/home\/support-for-researchers\/ethics\/mcmaster-research-ethics-board-mreb\/mreb-data-storage-and-security-tools\/<\/a>\r\n\r\nMistry, K., Merrick, S., Cabecinha, M., Daniels, S., Ragan, J., Epstein, M., Lever, L., Venables, Z. C., & Levell, N. J. (2024). Fraudulent Participation in Online Qualitative Studies: Practical Recommendations on an Emerging Phenomenon. Qualitative Health Research, 10497323241288181-. https:\/\/doi.org\/10.1177\/10497323241288181\r\n\r\nSalmons, J. (2024, May 29). Avoid Scams, Imposters, and Fraud in Online Research Participation. Sage Research Methods Community. https:\/\/researchmethodscommunity.sagepub.com\/blog\/imposters-online-research<\/a>\r\n\r\nSantinele Martino, A., Perrotta, A., & McGillion, B. J. (2024). Who can you trust these days?: Dealing with imposter participants during online recruitment and data collection. Qualitative Research\u202f: QR, 24(5), 1291\u20131301. https:\/\/doi.org\/10.1177\/14687941231224591\r\n\r\nToronto Metropolitan University. (2017, November). GUIDELINES FOR OBTAINING CONSENT AND ASSENT. https:\/\/www.torontomu.ca\/content\/dam\/research\/documents\/ethics\/guidelines-for-obtaining-consent-and-assent-1.pdf<\/a>","rendered":"
Chapter 1<\/h6>\n

American Psychological Association. (2021). Equity, Diversity, and Inclusion Framework. American Psychological Association. https:\/\/www.apa.org\/about\/apa\/equity-diversity-inclusion\/framework.pdf<\/a><\/p>\n

Benz, C., Scott-Jeffs, W., McKercher, K. A., Welsh, M., Norman, R., Hendrie, D., Locantro, M., & Robinson, S. (2024). Community-based participatory-research through co-design: supporting collaboration from all sides of disability. Research Involvement and Engagement, 10(1), Article 47. https:\/\/doi.org\/10.1186\/s40900-024-00573-3<\/a><\/p>\n

Beyond Sticky Notes. (2020). What is co-design?. https:\/\/www.beyondstickynotes.com\/what-is-codesign<\/a><\/p>\n

Case Western Reserve University. (2018, April 18). Universal Design for Research. https:\/\/case.edu\/nursing\/universal-design-research<\/a><\/p>\n

Goodfellow L. T. (2023). An Overview of Survey Research. Respiratory care, 68(9), 1309\u20131313. https:\/\/doi.org\/10.4187\/respcare.11041<\/a><\/p>\n

Ponto J. (2015). Understanding and Evaluating Survey Research. Journal of the advanced practitioner in oncology, 6(2), 168\u2013171.<\/p>\n

Rachele, J. N., Burn, G., Burke, K., & Alisic, E. (2024). Improving inclusion for children and young people with a disability in inner-city Melbourne, Australia. Cities, 150, 105103. https:\/\/doi.org\/10.1016\/j.cities.2024.105103<\/a><\/p>\n

Sheridan, E. (2021, January 31). The curb cut effect: How universal design makes things better for everyone. Medium. https:\/\/uxdesign.cc\/the-curb-cut-effect-universal-design-b4e3d7da73f5<\/a><\/p>\n

Toronto Metropolitan University. (2025). Survey tool selection guide. https:\/\/www.torontomu.ca\/courses\/guide-to-tech\/survey-selection-guide\/<\/a><\/p>\n

United Nations. (2021). Disability Inclusive Language Guidelines. United Nations. https:\/\/www.ungeneva.org\/sites\/default\/files\/2021-01\/Disability-Inclusive-Language-Guidelines.pdf<\/a><\/p>\n

Chapter 2<\/h6>\n

Andrews, E. E., Powell, R. M., & Ayers, K. (2022). The evolution of disability language: Choosing terms to describe disability. Disability and Health Journal, 15(3), 101328. https:\/\/doi.org\/10.1016\/j.dhjo.2022.101328<\/a><\/p>\n

Carter-Long, L. (2017). Nothing feels real a third of the time. Ouch Talk Show presented by Kate Monaghan and Simon Minty. London, United Kingdom: British Broadcasting Company. Retrieved from https:\/\/www. bbc. com\/news\/disability-42223698.<\/p>\n

Conroy, N. E., McDonald, K. E., & Olick, R. S. (2021). A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research. Journal of Intellectual Disability Research, 65(10), 941\u2013948. https:\/\/doi.org\/10.1111\/jir.12877<\/p>\n

Harvard University Program On Survey Research. (2007, November 17). TIP SHEET ON QUESTION WORDING. https:\/\/psr.iq.harvard.edu\/sites\/g\/files\/omnuum11131\/files\/psr\/files\/PSRQuestionnaireTipSheet_0.pdf<\/a><\/p>\n

James, D. C. S., Harville, C., Whitehead, N., Stellefson, M., Dodani, S., & Sears, C. (2016). Willingness of African American Women to Participate in e-Health\/m-Health Research. Telemedicine Journal and E-Health, 22(3), 191\u2013197. https:\/\/doi.org\/10.1089\/tmj.2015.0071<\/a><\/p>\n

Johansson, S., Gulliksen, J., & Gustavsson, C. (2021). Disability digital divide: the use of the internet, smartphones, computers and tablets among people with disabilities in Sweden. Universal Access in the Information Society, 20(1), 105\u2013120. https:\/\/doi.org\/10.1007\/s10209-020-00714-x<\/p>\n

Matthes, N., Willem, T., Buyx, A., & Zimmermann, B. M. (2024). Social Media Recruitment as a Potential Trigger for Vulnerability: Multistakeholder Interview Study. JMIR Human Factors, 11, e52448\u2013e52448. https:\/\/doi.org\/10.2196\/52448<\/p>\n

Mikulak, M., Ryan, S., Russell, S., Caton, S., Keagan\u2010Bull, R., Spalding, R., Ribenfors, F., & Hatton, C. (2022). \u2018Internet is easy if you know how to use it\u2019: Doing online research with people with learning disabilities during the COVID\u201019 pandemic. British Journal of Learning Disabilities, 10.1111\/bld.12495. https:\/\/doi.org\/10.1111\/bld.12495<\/a><\/p>\n

Nicolaidis, C., Raymaker, D. M., McDonald, K. E., Lund, E. M., Leotti, S., Kapp, S. K., Katz, M., Beers, L. M., Kripke, C., Maslak, J., Hunter, M., & Zhen, K. Y. (2020). Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations. Autism in Adulthood, 2(1), 61\u201376. https:\/\/doi.org\/10.1089\/aut.2019.0074<\/a><\/p>\n

Sobolewski, J., Rothschild, A., & Freeman, A. (2024). The Impact of Incentives on Data Collection for Online Surveys: Social Media Recruitment Study. JMIR Formative Research, 8(1), e50240. https:\/\/doi.org\/10.2196\/50240<\/a><\/p>\n

United Nations. (2019). DISABILITY-INCLUSIVE LANGUAGE GUIDELINES. https:\/\/www.ungeneva.org\/sites\/default\/files\/2021-01\/Disability-Inclusive-Language-Guidelines.pdf<\/a><\/p>\n

Chapter 3<\/h6>\n

Bishop, R., Laugharne, R., Shaw, N., Russell, A. M., Goodley, D., Banerjee, S., Clack, E., & Shankar, R. (2024). The inclusion of adults with intellectual disabilities in health research \u2013 challenges, barriers and opportunities: a mixed\u2010method study among stakeholders in England. Journal of Intellectual Disability Research, 68(2), 140\u2013149. https:\/\/doi.org\/10.1111\/jir.13097<\/p>\n

Government of Canada. (2023, January 11). TCPS 2 (2022) \u2013 Chapter 3: The Consent Process https:\/\/ethics.gc.ca\/eng\/tcps2-eptc2_2022_chapter3-chapitre3.html#10<\/a><\/p>\n

Government of Canada. (2023, January 11). TCPS 2 (2022) \u2013 Chapter 5: Privacy and Confidentiality. https:\/\/ethics.gc.ca\/eng\/tcps2-eptc2_2022_chapter5-chapitre5.html<\/a><\/p>\n

Government of Canada. (2024, April 5). Research Ethics Board: Consent process. https:\/\/www.canada.ca\/en\/health-canada\/services\/science-research\/science-advice-decision-making\/research-ethics-board\/consent-process.html<\/a><\/p>\n

Hamilton, J., Ingham, B., McKinnon, I., Parr, J. R., Tam, L. Y., & Le Couteur, A. (2017). Mental capacity to consent to research? Experiences of consenting adults with intellectual disabilities and\/or autism to research. British Journal of Learning Disabilities, 45(4), 230\u2013237. https:\/\/doi.org\/10.1111\/bld.12198<\/p>\n

McMaster University. (2022, September 28). MREB Data Storage and Security Tools. https:\/\/research.mcmaster.ca\/home\/support-for-researchers\/ethics\/mcmaster-research-ethics-board-mreb\/mreb-data-storage-and-security-tools\/<\/a><\/p>\n

Mistry, K., Merrick, S., Cabecinha, M., Daniels, S., Ragan, J., Epstein, M., Lever, L., Venables, Z. C., & Levell, N. J. (2024). Fraudulent Participation in Online Qualitative Studies: Practical Recommendations on an Emerging Phenomenon. Qualitative Health Research, 10497323241288181-. https:\/\/doi.org\/10.1177\/10497323241288181<\/p>\n

Salmons, J. (2024, May 29). Avoid Scams, Imposters, and Fraud in Online Research Participation. Sage Research Methods Community. https:\/\/researchmethodscommunity.sagepub.com\/blog\/imposters-online-research<\/a><\/p>\n

Santinele Martino, A., Perrotta, A., & McGillion, B. J. (2024). Who can you trust these days?: Dealing with imposter participants during online recruitment and data collection. Qualitative Research\u202f: QR, 24(5), 1291\u20131301. https:\/\/doi.org\/10.1177\/14687941231224591<\/p>\n

Toronto Metropolitan University. (2017, November). GUIDELINES FOR OBTAINING CONSENT AND ASSENT. https:\/\/www.torontomu.ca\/content\/dam\/research\/documents\/ethics\/guidelines-for-obtaining-consent-and-assent-1.pdf<\/a><\/p>\n","protected":false},"author":554,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"pb_show_title":"on","pb_short_title":"","pb_subtitle":"","pb_authors":[],"pb_section_license":""},"back-matter-type":[],"contributor":[],"license":[],"class_list":["post-41","back-matter","type-back-matter","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/pressbooks\/v2\/back-matter\/41","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/pressbooks\/v2\/back-matter"}],"about":[{"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/wp\/v2\/types\/back-matter"}],"author":[{"embeddable":true,"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/wp\/v2\/users\/554"}],"replies":[{"embeddable":true,"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/wp\/v2\/comments?post=41"}],"version-history":[{"count":15,"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/pressbooks\/v2\/back-matter\/41\/revisions"}],"predecessor-version":[{"id":895,"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/pressbooks\/v2\/back-matter\/41\/revisions\/895"}],"metadata":[{"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/pressbooks\/v2\/back-matter\/41\/metadata\/"}],"wp:attachment":[{"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/wp\/v2\/media?parent=41"}],"wp:term":[{"taxonomy":"back-matter-type","embeddable":true,"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/pressbooks\/v2\/back-matter-type?post=41"},{"taxonomy":"contributor","embeddable":true,"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/wp\/v2\/contributor?post=41"},{"taxonomy":"license","embeddable":true,"href":"https:\/\/pressbooks.library.torontomu.ca\/accessibledigitalsurveyresearch\/wp-json\/wp\/v2\/license?post=41"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}